Tuesday, March 15, 2005

The one about Jay doing so much better today.....

Well, we just got home and I almost was in tears tonight....when we went back for the 5:00 pm visiting time they had taken the breathing tube out of him and he was doing much better...with a breathing mask on...but his ands were still tied down because he was groggy and wanted to rip out his feeding tube in his nose. He would just shake his head a little and barely get the words of "yes" or "no" out to us.....but tonight @ the 9:00 pm visiting time he was doing very good! He was talking to us he was understanding us great and we spent most of the time cleaning his mouth out with glycerin swabs to clean out all the blood that was in his mouth from the breathing tube rubbing his mouth and throat and then the O2 mask was drying it out and causing him to have a very blood crusted mouth...the nurse gave us several frozen glycerin swabs and he loved those and we cleaned the blood the best we could.....he wanted water, but when he sucked on a small sponge to get maybe a tea spoon of water down it caused him to cough and not breathe as good....what can you expect when his throat has caked blood on the back of it?
He is doing so much better....Sheila and I wanted to start crying when he was talking to us and smiling at us and saying that he loved us (heh heh). Sheila has been saying this whole time how much she missed her Jay hugs...and tonight she got one! The nurse let us untie his hands and he would hold our hands and squeeze them the entire hour that we were there. He was so scared that it was the cancer that put him back in ICU...and he was so relieved to know that it was not the cancer and it was two infections that caused his blood pressure to go way down that made him go into ICU.
He was doing great and only got upset when we told him that we had to leave and that we would see him tomorrow, heh heh....that is a great way to make a brother and wife very happy! :)
All in all he is doing much better and I can say easily that he will at least make it out of the ICU....sometime.....
His hands and feet are still very swollen from all the fluids and they are hoping that they can pull the feeding tube from his nose tomorrow and maybe he can start eating some very soft foods....but I still worry about the throat hurting him....but I am sure they know what is best. I just wanted to go out of his room and dance a gig in the main ICU waiting room, heh. I did give his nurse a hug (it was the least I could do) she is so sweet and you can tell that she really loves Jay and takes care of him.

They are still saying that we will not know if the stem cell transplant took place until a few weeks out...but I hope to hear that news as soon as possible. They have no idea when he will be out of ICU or anything like that, but so far he has proven to be another miracle through this part of the process and he continues to fight anything that is getting in the way of him getting better and serve God to be who God has called him to be....heh..

We prayed together before I left and then I gave him and Sheila some alone time and he seems to be doing much better....maybe it took all those prayers from Sunday to hit 2 days later, heh. Thank you all again for all your prayers and thoughts and please keep them up...there is a glimmer of light at the end of the tunnel...but he still has a lot to go through just to get out of ICU and then to attempt to get back to his room in the cancer ward. Thank you all again and love ya! God bless and please KUTPs!!!!! (but for tonight send up some praise with this prayers!)

2 comments:

NAUAuntie said...

I am from the MSF forum, Nancy has been keeping us updated on Jay's terrific story of survival -
I am keeping you all in my prayers!
Many Hugs,
Jane in AZ

Anonymous said...

Hi DG, I just want to tell you how sorry we are on the lose of Jay. Shayla, Kayla and I have been praying for him thru his entire illness. We all are so selfish and wanted another outcome for him, but God does know best. It is so difficult to understand when such a young life is taken. I believe that one day when we have lived our life and get to Heaven we are going to know that Jay was actually the lucky one because he went home to Jesus at such an early age. In the days ahead you will cherish even more your special memories of Jay. Please know that you and your family are very much in our prayers. Love, Zahn