Now the Burkitts is in his central nervous system and in the Blood-Brain Barrier. The Dr.'s concluded this when they tested his peripheral nervous system and found nothing and after doing all their tests have shown that it could only be in one place. It looks like the cancer moved to a better (much better) hiding place when the chemo was being administered to Jay. (this explains why they did not detect it earlier because it was not there, but after the chemo started to attack it it ran to the nervous system and the blood/brain barrier. With the Lymphoma in the blood brain barrier it is very difficult to attack.
Jay put it this way:
Imagine a castle wall that can never be destroyed. Now, imagine the Lymphoma guys in on that wall attacking the good cancer destroying chemo on both sides of the wall. (inside and outside of the castle) Now, the Chemo can only shot the cancer when they come out of hiding from the wall. Now also realize that the Chemo guys can only attack with limited ammo, because the cancer guys on the wall will start to not even be effected by the chemo because they become immune to it after a while. That is what it is like with the cancer being in his central nervous system and in the blood brain barrier.
Now what we have to pray for is that the chemo will be very effective against the cancer hanging out in the barrier. (We will know the results to this by the end of the week.)
The good thing is that we know what is going on and why Jay has been in so much pain with the cancer on the central Nerve Root This is causing Jay to have tremendous pain from all over his body. (Jay said at one time his pain was so bad that he started to cry just thinking about it. There are no major tumors in the central nervous system, but they think it is still effecting the Nerve roots some how.
But the bad is that the cancer found a very good place to hide, and that you can only take so much chemo before the cancer gets wise to the treatment and then the chemo is not effective...So we have to pray that this chemo attacking from both sides of the wall is very effective.
So right now they are giving him (via a spinal tap to get into his spinal fluid)Methotrexate and Solu-Medrol (a steroid to help the pain. They should be starting up the CHOP again soon, but really want to see how effective the spinal tap drugs are effecting the Lymphoma that they are almost 100% positive in in the central nervous system.
All that to say.... Please continue praying for Jay and his wife, and all of us! Thank you for your prayers and love!
OH for all you Halo freaks out there I just Down loaded a program called xbconnect and if a game has a system link in it then you can play people online. It was lots of fun today playing people in Texas and Alabama in Halo online!!! If you have a high speed internet connection and Halo, and a router, then please contact me and lets play some Halo online!!! The program is free so just go get it!!!
Love you all, take care!
Fun Easter egg this post too!
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