Day three...

Well yesterday could have been better, but we survived the LP (lumbar Puncture) Chemo. Jay had a roiugh time of it because he said that the Dr. that does it went fast this time and it really caused him some serious pain in his legs, but madr it through OK. Jay talked to the Dr yesterday before the Chemo and told her about him having lots of night sweats. She was concerned that he might be getting a feaver due to the Cancer. He told her that he was starting to get some feeling back into the side of his face that has Balse Palusy, he could move it a very little bit, but he felt it was improvement. He also told her that he was starting to feel a little bit more pain back into his jaw, and that worried her too, because she did not want him to start to have the same stuff with the cancer coming back again while they are treating the nervous system right now with the LP Chemo treatments.

So... after she went away she called the head Dr. and now she has decided to not do the LP anymore and treat Jay's entire body in single treatements. Thisd means super high doeses of Chemo! This will effect the entire body, and not just his blood only or not just his spine and brain only (which is waht they have been doing) Now they will do the high dose Chemo Methotrexate that will hit all parts of his body and even go into the brain.

The problem with all of this is that this is the stuff that will really kick Jay's butt. He will be admited on Thursday for 5-6 days and they will (as the Dr. calles it) "Whip up a nive Chemo Cocktail" for Jay. She told him that it will effect his mucus glands (so he is asking for lots of foods that will coat his throut, ha ha) The Dr. also said that this is the one that will get involved into this stomach and GI trac, so that means feeling very sick, vomity, upset stomach, etc...

So, I will get to be here for him and Sheila for Thursday, Friday, and a little bit of Saturday until Sheila has to take me back to the Airport.

This is not the best news to hear, but I am glad they are finaly doing this and attacking thr Chemo in the entire body, because we were all wondering why they are just doing the nervous system (and possibably have the cancer come back into other parts of his body) or just doing the blood/bone marrow stuff (and have the cancer come back into his nervous system). So now thye will be doing the Chemo in his blood in Huge amounts and will hit the entire body, blood, bone marrow, and nervous system (i.e. spine, brain). This will really not be a fun time for Jay, but we are all glad they are tired of just treating one place and are not treating him similarly as if he had Leukima.

He still has Burkitt's Lymphoma, but it is in his bone marrow, Central Nervous system, and possibly Jaw, slpeen, stomach, etc...


Wiell, with all that said As soon as I get home I will put up a picture of Jay and me so you can all see how good he looks...and I look heh. Love you all and Take care.....

Oh BTW: after we got out of the hospital we ate Mediterain food resturant called Aladdin's Eatery, and dang it was really good!!! We had two orders of:

Kibbie
Two lean beef shells mixed with crushed bulgar wheat and stuffed with spiced ground beef, roasted onions & pine nuts then deep fried in peanut oil. Served with a side of yogurt & salata.

and Jay and I ordered:

Mediterranean Lamb Plate
Tender strips of marinated chargrilled lamb. Served with seasoned white rice topped with vermicelli, sautéed pine nuts, almonds, and cinnamon. Your choice of garlic or tahini sauce. Pita on the side.

and Sheila ate:

Mediterranean Beef Kafta Plate
Chargrilled ground sirloin, onions and parsley seasoned with herbs and spices. Served with seasoned white rice topped with vermicelli, sauteed pine nuts, almonds, and cinnamon. Your choice of garlic or tahini sauce. Pita on the side.

Oh yeah, and today I replaced thier fountian bottom plastice cover in the back yard and got the fountian up and going and Jay loves to sit down there to listen to it. I also installed an air conditioner in my room for thier guests anytime they have some. It should be nive and cold tonight for me.

Other than that we have been playing lots of games on the computer and Xbox.

Right now we are leaving to go eat Sushi!!!!!!!!!!!!!!!! Woo hoo!!!!!!!!!! (My brother loves it too, heh.) I just hope he is not over doing himself! I will try to keep watching him and listening to Sheila to see when he needs to go back to rest or something like that.

Thank yall for praying for him!!! We are dreading gong back to the Hospital to be admited, but we are really enjoying today and tomorrrow!